The Patient Group Pavilion - discover an inspiring programme

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The Patient Group Pavilion - the dedicated space for cancer patients around the globe.

An innovative addition to this year's Congress, the Patient Group Pavilion was designed to foster networks and partnerships, facilitate exchanges of best practices and strengthen patients’ voices around the globe.

The sessions exceeded all expectations in terms of the level of participation and enthusiasm from Congress participants.

The passion of the speakers and their dedication and commitment to people touched by cancer was felt by all who attended.

Highlights included:
  • 'Children and Cancer: more than meets the eye', with Michaelina Chua from the National Cancer Society of Malaysia, describing water and sand play giving children a way to express their feelings and frustrations,
  • 'Peer Support from associations from around the world', with Carol Jabari from Patient’s Friends Society Jerusalem, Palestine, describing the challenges faced by patients trying to reach hospitals to obtain cancer treatment.

The atmosphere at the Pavilion was often electric, with cancer survivors from around the world uniting in solidarity. Many valuable contacts and future collaborations were made, not to mention new friends.

About the Pavilion

The Pavilion programme was developed by international experts: Anna Boltong from the International Cancer Information Services Group (ICISG), Cora Honing from the Association of European Cancer Leagues (ECL) and the Reach to Recovery International network.

With special thanks to the sponsors who proudly supported the initiative.

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Programme

Tuesday 1st November

Reach to Recovery International - Programme successes and milestones 1

Chair: Ann Steyn, Reach to Recovery, South Africa

  1. Breast Cancer Support and Ambulatory Surgery; Annie Brousse, Vivre Comme Avant, France
  2. Make it Work: The Transformation of the Indonesia Breast Cancer Foundation; Budiastuti Sumilak Wening, Indonesia Breast Cancer Foundation, Indonesia
  3. Cancer Patients’ Association of Slovenia Support Programme On the Way to Recovery; Majda Šmit, Cancer Patients’ Association of Slovenia, Slovenia
  4. Peer Support and Exercise: An Extension of the Support Role; Cathy Hirsch, Reach to Recovery International, USA

 

Video Screening - Susan G. Komen for the Cure

United in hope: A global journey

Cervical and Breast cancers are a global health crisis. The video includes footage of 3 examples of how far we have come and how far we still have to go in treating these diseases around the world.

 

Susan G Komen UNITED IN HOPE Teaser

 

Garantir l’accompagnement social des patients : regards croisés 

Chair: Elizabeth Dalais, Link to Life, Maurice

  1. L’accompagnement du patient cancéreux au Maroc; Houda Fakhkhari, Fondation Lalla Salma, Maroc
  2. Garantir l’accès des plus vulnérable aux soins – expérience d’un réseau de santé pour la prise en charge de la précarité; Anne Festa, AC Santé 93, France
  3. L'accompagnement des patients au Gabon: la Maison d'Alice; Sana Digombe, Fondation Sylvia Bongo Ondimba pour la Famille, Gabon
Reach to Recovery International - Programme successes and milestones 2

Chair: Ranjit Kaur Pritam Singh, Breast Cancer Welfare Association, Malaysia

  1. Give-a-Care Campaign for Young Women with Breast Cancer; MJ DeCoteau, Rethink Breast Cancer, Canada
  2. My Angels the Strangers; Demi Lubinga, Breakthrough Cancer Trust, Zambia
  3. The ‘Breast of Intentions’; Jo Lovelock, Breast Intentions, Australia
Cancer, work and you

Chair: Heidi Brorson, Norwegian Cancer Society, Norway

  1. Keeping a job with/after cancer- How to facilitate access to employment benefits; Laura Del Campo, Associazione italiana Malati di Cancro, pareenti e amici, Italy
  2. Protecting workers from discrimination; Deborah Lawson, McCabe Centre for Law & Cancer, Australia
  3. Barriers on returning to work after cancer; Monick Leal, The Portuguese League Against Cancer, Portugal

Wednesday 2 November

Children and Cancer: more than meets the eye

Chair: Jane Maher, Macmillan Cancer Support, United Kingdom

  1. “Weekly Wonder” helping kids heal from cancer; Michaelina Chua, National Cancer Society Malaysia, Malaysia
  2. “OmSorg – Dealing with Bereavement – integrating Bereavement Response Plans in all Danish Public Schools and Kindergartens”; Per Bøge, Head of section, Danish Cancer Society, Denmark
  3. Growing with Cancer; Viji Venkatesh, Max Foundation, India
Cancer at the grassroots - Community development strategies 

Chair: John McCormack, Irish Cancer Society, Ireland

  1. The Legal Network for Cancer Patients: from advocacy to action; Dan Cimpoeru, European Cancer Patient Coalition, Romania
  2. A community based cancer prevention and care programme in 90 villages of two districts of Gujarat state of India; Shyamsundar J Raithatha, Charutar Arogya Mandal, India
  3. Saving Women One City at A Time: A Community-Based Early Breast Cancer Detection Program in the Philippines; Kara Magsanoc-Alikpala, ICANSERVE Foundation, Philippines
Experiences of cancer survivorship

Chair: Judith Salerno, Susan G. Komen, United States

  1. ABC Patient Academy - a collaborative effort involving nurses and oncologists, with the help of mediators from the patient organization, to educate and empower advanced breast cancer patients; Teodora Kolarova, APOZ and Friends Association of Cancer Patients and Friends, Bulgaria
  2. Voices of Cancer Survivors - Their expressions after participating in the Shwe Yaung Hnin Si Cancer Foundation activities - Myanmar; San Shwe, Shwe Yaung Hnin si Cancer Foundation Myanmar, Myanmar
  3. CANCON recommendation for a European Survivorship & Rehabilitation plan; Francesco de Lorenzo, European Cancer Patients Coalition, Italy

thursday 3 November

Peer support from associations from around the world

Chair: Annie Miller, Practical Support, Cancer council Australia, Australia

  1. Implementation of breast cancer associations and potential impact in rural Rwanda; Albert Ndayisaba, Partners in Health, Rwanda
  2. Challenges and solutions for Palestinian cancer patients and their families; Carol Jabari, Patient's Friends Society-Jerusalem, Palestine
  3. What makes someone a suitable cancer support group leader? Identifying and preparing group leaders for the role; Amanda Pomery, Prostate Cancer Foundation of Australia, Australia
 
Strengthening collaboration to increase access to palliative care in Africa: Translating the Kampala Declaration into reality 
Renforcer la collaboration pour l’accès aux soins palliatifs en Afrique – Faire de la Déclaration de Kampala une réalité 

Chair: Cristina Stefan, President Elect, AORTIC, South Africa

 

  1. The Kampala Declaration as a key momentum for strengthening PC in the region; Emmanuel Luyirika, African Palliative Care Association (APCA), Uganda
  2. Les soins palliatifs en mouvement - Un exemple d’échange de bonnes pratiques entre pairs; Anselme Kananga, Palliafamilli, DRC
  3. Les soins palliatifs en Afrique francophone; Sylvie Dive, Hospice Uganda, Uganda

Facilitateur bilingue : Gail Taillefer, Cancer Support France, France

    Cancer Information and support

    Chair: Kevin Babb, ICISG, United States

    1. Can we improve Care at Home for people with cancer – an example from the UK; Fran Woodard, Macmillan Cancer Support, United Kingdom
    2. Patient Navigators for socially disadvantaged cancer patients; Bo Andreassen Rix, Danish Cancer Society, Denmark
    3. “Your Urgent Referral Explained”: Putting patients at the heart of new information resources; Dulcie Ireland, Cancer Research UK, United Kingdom