The Patient Group Pavilion aims to raise the voices of patients through shared learning and collaborative exchanges amongst patient support groups and other healthcare professionals.
The WCC theme ‘The way forward’ will include patient-oriented initiatives across its eight theme rooms. In addition, the Patient Group Pavilion provides an additional platform to raise the voice of cancer patients from all over the world.
In order to ensure a first-class educational programme that resonates with the international audience of the Congress, UICC and the co-chairs of the Patient Group Pavilion will prioritise proposals that meet the following selection criteria (not limited to):
- topics of global interest
- initiatives relevant to several institutions
- inclusion of multisectoral perspectives
- topics aligned with one of the three overarching themes highlighted below
- innovative ideas or approaches that can be replicated in other settings
- examples of best practices and effective collaborative approaches in various areas of cancer control that affect women, men and children with cancer, including their families and relatives
By submitting a case study for the Patient Group Pavilion, UICC Members are eligible for a nomination for a UICC Member Award, in the category "Best case study of the Patient Group Pavilion".
The programme of the Patient Group Pavilion is co-chaired by:
- Mrs Ann Steyn, UICC Board Member and Past President, Reach to Recovery International, South Africa
- Professor Jeff Dunn AO, UICC Board Member and CEO, Prostate Cancer Foundation of Australia
The following themes will be addressed over the duration of the Congress:
This theme will provide an opportunity to share experience and best practices regarding the engagement of patients and caregivers and the representation of their perspectives in all phases of the cancer control process, from advocacy and awareness-raising to patient-centred healthcare systems. The case studies will also cover community-based interventions, mobilisation of patients and survivors as well the representation of the diversity of patient voices as a critical aspect of the improvement of cancer prevention and control at the local, regional and global levels.
- Patient advocacy – guidelines
- Patient communication, data & medical information, including in the digital era
- Educational needs of the patient community
- Opportunities for collaboration amongst patients (programmes, online platforms...)
- Cultural sensitivities & stigma
- Disparities & prevalence of cancer in racial/ethnic minorities
- New models for community mobilisation and engagement
Survivorship and patient support
Patient support programmes are playing a critical role in assisting cancer patients and ensuring the quality of care along the cancer continuum. This theme will provide the opportunity to share case studies about the practical and psychosocial accompaniment of patients and caregivers to ensure access to adapted care and improve patient outcomes, the quality of life and experience during and after the cancer journey. It also includes interventions dedicated to rehabilitation programmes to survivors.
- Patient navigation programmes
- Value in cancer care
- Drugs shortages, especially in LMICs
- Quality of life – when do we stop treating?
- Life after cancer
- Sexuality and cancer treatment
- Patients’ financial considerations, including health insurance concerns
- Definition and measurement of patients’ care expectations (service features, accessibility of information, environmental factors, equipment availability and functionality, etc.)
- The cancer journey for families of cancer patients
As organisations, patient support groups are facing specific challenges in terms of developing, maintaining and increasing their activities with a view to achieving their objectives and improving their impact on patients and caregivers. While patient groups are gaining in professionalism and expertise, they are also facing specific challenges such as a higher dependence on volunteerism, access to qualified support providers and increasing needs for expertise in fundraising and advocacy. This theme is aiming to provide a platform for sharing case studies on the successes and challenges of organisational aspects of patient support groups.
- Organisational development of patient support groups – how does it work?
- Impact of shrinking health care resources
- Innovative sustainable funding models within today’s limited budgets
- Navigating the legal and policy environments for patients and patient support groups
- Peer to peer support especially at the leadership level
- Educational needs and training opportunities for patient support groups
- Educational needs of the professional oncology community
- Collaboration across patient support groups, across regions and across diseases