Patient Group Pavilion

Young leaders' at the 2019 World Cancer Leaders Summit

The 2020 Patient Group Pavilion aims to raise the voices of patients’ through shared learning and collaborative exchanges amongst patient support groups and other healthcare professionals.

Programme OUTLINE

The 2020 WCC theme The way forward will include patient-oriented initiatives in each of its eight themed rooms. In addition, the Patient Group Pavilion will continue to the central point of support and a platform to raise the voice of cancer patients, taking the scope of their care to the next level.

The sessions and discussions that will take place in the Patient Group Pavilion should highlight multisectoral perspectives, examples of best-practices and effective collaborative approaches in various areas of cancer control that affect women, men and children with cancer, including their families and relatives.

The 2020 Patient Group Pavilion programme, scheduled over the three Congress days, will be finalised in April 2020 after a thorough selection by the two-co-chairs: Mrs Ann Steyn, UICC Board Member and Past President, Reach to Recovery International, South Africa and Professor Jeffery Dunn AO, UICC Board Member, CEO, Prostate Cancer Foundation of Australia.

Submit your case study

The call for case studies will be open for submissions from 1 December 2019 to 15 February 2020

Read the submission guidelines here

Notifications to submitters will be sent from 18 March to 31 March.
The PGP programme schedule will be available online as of mid-April 2020.


*** By submitting a case study for the patient group pavilion, you will be eligible (if you are a UICC member organisation) to the best case study of the 2020 WCC patient group pavilion Award. ***

The programme schedule will feature the following themes and structure:

Tuesday 20 October: Patient voices

Six one-hour sessions: three in the morning and three in the afternoon
One chair and three presenters for each session

This track will provide an opportunity to share experience and best practices regarding the engagement of patients and caregivers and the representation of their perspectives in all phases of the cancer control process, from advocacy and awareness-raising to patient-centred healthcare systems. The case studies will also cover community-based interventions, mobilisation of patients and survivors as well the representation of the diversity of patient voices as a critical aspect of the improvement of cancer prevention and control at the local, regional and global levels. 

Example of themes for the case studies:

  • Patient advocacy – guidelines
  • Patient communication, data & medical information, including in the digital era
  • Educational needs of the patient community
  • Opportunities for collaboration amongst patients (programmes, online platforms, etc...)
  • Cultural sensitivities & stigma
  • Disparities & prevalence of cancer in racial/ethnic minorities
  • New models for community mobilisation and engagement

Wednesday 21 October: Survivorship and patient support

Six one-hour sessions: three in the morning and three in the afternoon
One chair and three presenters for each session

Patient support programs are playing a critical role in assisting cancer patients and ensuring the quality of care along the cancer continuum. This track will provide the opportunity to share case studies about the practical and psychosocial accompaniment of patients and caregivers to ensure access to adapted care and improve patient outcomes, the quality of life and experience during and after the cancer journey. It also includes interventions dedicated to rehabilitation programmes to survivors.

Example of themes for the case studies:

  • Access to care
  • Quality cancer care
  • Patient navigation programmes
  • Value in cancer care
  • Drugs shortages, especially in LMICs
  • Quality of life – when do we stop treating?
  • Life after cancer
  • Sexuality and cancer treatment
  • Patients’ financial considerations, including health insurance concerns
  • Definition and measurement of patients’ care expectations (service features, accessibility of information, environmental factors, equipment availability and functionality, etc...)
  • The cancer journey for families of cancer patients

Thursday 22 October: Organisational development

Three one-hour sessions in the morning
One chair and three/four presenters for each session

As organisations, patient support groups are facing specific challenges in terms of developing, maintaining and increasing their activities with a view to achieving their objectives and improving their impact on patients and caregivers. While patient groups are gaining in professionalism and expertise, they are also facing specific challenges such as a higher dependence on volunteerism, access to qualified support providers and increasing needs for expertise in fundraising and advocacy. This track is aiming to provide a platform for sharing case studies on the successes and challenges of organisational aspects of patient support groups.

Example of themes for the case studies:

  • Organisational development of patient support groups – how does it work?
  • Impact of shrinking health care resources
  • Innovative sustainable funding models within today’s limited budgets
  • Navigating the legal and policy environments for patients and patient support groups
  • Peer to peer support especially at the leadership level
  • Educational needs and training opportunities for patient support groups
  • Educational needs of the professional oncology community
  • Collaboration across patient support groups, across regions and across diseases

The Patient Group Pavilion is open to sponsorship.
For more information, please consult our sponsorship brochure (page 27) and contact us at